Snoring

That’s what I’m currently listening to…my husband snoring with Orphan Black in the background.

Our babies are 17 months old!  Holy cow!  Little A is walking, running, wandering, all over the place.  Our toddler is really a big boy now…he loves Coldplay more than any kid has ever loved Coldplay.  He says that Chris Martin is at our house, eating dinner with us, etc.  He talks constantly and enjoys getting in his sisters’ faces and screeching.

Baby B is still in her loop of therapies and doctors’ appointments.  She saw the GI doctor, who, between exclaiming, “oh, she’s such a flirt!” and “she’s flirting with me!” (ew) mentioned the possibility of a GI tube for feeding.  He said that many parents do this because it’s more convenient for them to tube-feed a child who’s having feeding issues.  She’s trying to eat more and she’s getting better at it…sometimes.  We’re definitely not going to consider that unless she’s losing weight and not thriving.  We’re also going to see another GI doctor who isn’t so creepy.

She also went from “she’ll definitely need a new kidney in 3-5 years” two months ago to “I think she should be able to make it until age 10 without dialysis or transplant.”  So basically, it changes constantly.

Her recent brain MRI results show the large areas of damage, mostly on the left side and in the center of her brain.  Seeing those images is so scary.  She really does amazing things, much more than it appears she might from the images.  She has a lot of grey matter intact, so that is positive.

Other than that, we’re SSDD here.  Other people dream about going on vacation, but I dream about returning to legal work.  We still can’t figure out how to make that happen while B has so many appointments and therapies, but maybe at some point soon.  Our son is going to pre-k in the fall, so that’ll really change the daily routine here.  I look forward to seeing him interact more with other kids his age and learn how to follow rules a little better.  He’s so headstrong and argumentative; it’s exhausting.  That’ll be the hardest part for him, I think.  He already can read quite a bit, and he knows so much…he just has to figure out how to listen a little better.  But hey, we probably all need to learn that lesson, too.

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